Celine Dion Shares Struggles With Stiff Person Syndrome

Celine Dion on stage for NBC Today Show Concert with Celine Dion, Rockefeller Plaza, New York, NY July 22, 2016. Photo By: Derek Storm/Everett Collection

The singer and actress Celine Dion said that as part of emergency preparedness exercises, her twin boys, Nelson and Eddy, 13, were taught how to utilize panic buttons in case she has spasmodic episodes. 

The singer can be seen talking candidly about her battle with stiff person syndrome for her upcoming documentary– I Am: Celine Dion. The diva was diagnosed with the ailment two years ago. 

The significance of her twins’ support and close relationship are emphasized throughout the documentary. Celine has tried to quell her sons’ fears and tell them that she will be okay, but she is worried about them and the unknowns surrounding her illness.

After the loss of their father, René Angélil, in 2016, the children are scared of the thought of the loss of their mother.

She also disclosed that she was managing an additional symptom, the loss of her singing voice, which she has vowed to confront head-on rather than ignore. 

In the documentary’s teaser, Celine expresses her gratitude to her sons while pleading for her voice to come back so she may resume singing despite her health problems. The documentary also includes touching scenes of Celine spending time with her sons at home, which makes her happy.

The documentary provides a moving glimpse into her battle with stiff person syndrome, the unusual neurological disorder that is typified by unpleasant, sporadic muscular spasms and stiffness. 

Dion’s battle with the disease, which affects the brain and spinal cord, is chronicled in the documentary, which spans around a year. 

Her career has been severely hampered by the disease, which has also kept her from performing. 

The documentary will be available on Amazon Prime starting on June 25. In a rare interview with Vogue France, Dion talked candidly about her health issues and how she uses vocal, physical, and sports therapy to treat them. 

She has made the decision to dedicate herself entirely to collaborating with a medical team and pursuing a quest that will hopefully include plans to go back on stage for further performances. She can’t say with certainty if it will be sooner rather than later, but she is not giving up.